Arthritis Consumer Experts is a national organization that provides free, science-based information and education programs in both official languages to people with arthritis. Whether it’s supporting patients to better work with their healthcare providers, public formulary or private insurer, helping people reach out to their local elected official, or powering them to maintain their work careers, ACE supports Canadians living with all forms of arthritis by helping them take control of their disease and improve their quality of life. ACE is guided by a strict set of guiding principles, set out by an advisory board comprised of leading scientists, medical professionals and informed arthritis consumers. Please visits us at www.jointhealth.org or email us at firstname.lastname@example.org to learn more.
Arthritis Consumer Experts and its team members acknowledge that they gather and work on the traditional, ancestral and unceded territory of the Coast Salish peoples - xʷməθkʷəy̓əm (Musqueam), Sḵwx̱wú7mesh (Squamish), and Səl̓ílwətaʔ/Selilwitulh (Tsleil-Waututh) Nations.
The Arthritis Society is Canada’s national charity dedicated to fighting the fire of arthritis with the fire of research, advocacy, innovation and information and support. With the support of our donors and volunteers, we are all in to end arthritis, so people with arthritis can live their best life free from arthritis. The Arthritis Society is accredited under Imagine Canada’s Standards Program. For more information, visit arthritis.ca.
The Canadian Arthritis Patient Alliance (CAPA) is Canada’s only volunteer-based arthritis patient organization run by patients, for patients. True to its grassroots nature, CAPA is entirely patient-driven, independent, and supports a community of people living with arthritis across the nation. Our belief is that the first expert on arthritis is the person who lives with arthritis and provides a critical voice and perspective that needs to be heard in decision-making.
The Canadian Psoriasis Network (CPN) is a national not-for-profit organization dedicated to improving the lives of people with psoriasis and psoriatic arthritis (psoriatic disease) in Canada. We do this in part by providing current information on research and treatment options and by working with others to build awareness and advocacy about the complexity of these conditions.
Cassie and Friends is a national, patient and parent-led organization whose mission is to transform the lives of children and families affected by Juvenile Arthritis (JA) and other rheumatic diseases through research, connection, information and support. With the help of youth, parents, pediatric rheumatology teams, answer-seeking champions (aka researchers) and other friends, we’re committed to rapidly increasing JA research and support so we can get kids from diagnosis to remission as quickly, safely and as pain-free as possible. Our main programs include a virtual education series, online resource hub, peer support network, equipment cupboards and Team Cassie + Friends - our annual run/walk. Since 2007, we have raised over $3 million towards our vision of a pain-free future for kids. We welcome anyone interested to get involved!
Lupus Ontario is the largest provincial organization in Canada dedicated to improving the lives of lupus patients.
We aim to create awareness through our social media, website and annual events.
We annually fund six Ontario Lupus Clinics to maintain research databases and support programs.
We fund research, through our annual Geoff Carr Lupus Fellowship, which has raised $2.2 million since 1990, allowing us to train 30 rheumatologists at an accredited Ontario Lupus Clinic to perform research and specialize in lupus diagnosis and treatment. The annual grant of $65,000 is awarded to a rheumatology resident to extend their study for a year at an Ontario Lupus clinic and perform lupus research.
Take a Pain Check (TAPC) was launched as a podcast in March 2021. Soon after, Natasha Trehan built a community and Take a Pain Check became Take a Pain Check Foundation in October 2021. Take a Pain Check Foundation is a non-profit organization committed to the mission and vision of supporting youth and young adults with rheumatic diseases through social media, initiatives, advocacy, and raising awareness. TAPC hosts bi-weekly podcasts, run ambassador programs for health professionals and youth, pilot rheumatic-related events, feature stories on their blog platform and lead monthly Joint Chat Rheum hangouts. The podcast airs every other Sunday engaging guests in conversations about their chronic illness, their relationships, accomplishments, lifestyle, and much more. The podcast is available on Youtube, Spotify, Apple, Google Podcasts, and iHeartRadio. The overall goal is to empower youth to advocate for themselves, and to create a place where they feel understood. You can find more information about TAPC on their website www.takeapaincheck.com, Instagram, Twitter, Tiktok and Facebook.
There are many ways healthcare professionals and allies can get involved with TAPC. The newest way to get involved in this patient-led organization is through their Health Care Professional Ambassador (HCPA) program. The ambassador role varies from the promotion of the podcast to outreach tasks. Take a Pain Check ambassadors are vital members of the community. Being an ambassador will include opportunities to be involved and share information about healthcare, patient perspective and disability equity. In addition, ambassadors get access to a network of like-minded individuals. Physicians and allied health professionals are all eligible for this position. You can apply and read more about the program here.